Use of guidelines when planning home care of a girl with severe congenital myopathy

作者：Gray Kelly; Isaacs David^*; Kilham Henry; Tobin Bernadette; Waters Karen

来源：Journal of Paediatrics and Child Health, 2016, 52(1): 7-10.

DOI：10.1111/jpc.13065

• autonomy
• best interest
• guideline
• palliative care
• quality of life

We use issues that arose in the management of a 4-year old girl with a congenital myopathy to consider the tension between respecting the choices and decisions of the child's parents and applying clinical practice guidelines that emphasise minimising risk to the child. This case raises the issue of when it is reasonable to override parents' choice of management options.

• 出版日期2016-1