A Pilot Randomized Controlled Trial of a Holistic Needs Assessment Questionnaire in a Supportive and Palliative Care Service

作者：Ahmed Nisar; Hughes Philippa; Winslow Michelle; Bath Peter A; Collins Karen; Noble Bill

来源：Journal of Pain and Symptom Management, 2015, 50(5): 587-598.

DOI：10.1016/j.jpainsymman.2015.05.010

• Palliative care
• holistic needs assessment questionnaire
• SPARC
• MYCAW
• EQ-5D
• PEI

Context. At present, there is no widely used systematic evidence-based holistic approach to assessment of patients' supportive and palliative care needs.
Objectives. To determine whether the use of a holistic needs assessment questionnaire, Sheffield Profile for Assessment and Referral for Care (SPARC), will lead to improved health care outcomes for patients referred to a palliative care service.
Methods. This was an open, pragmatic, randomized controlled trial. Patients (n = 182) referred to the palliative care service were randomized to receive SPARC at baseline (n = 87) or after a period of two weeks (waiting-list control n = 95). Primary outcome measure is the difference in score between Measure Yourself Concerns and Wellbeing (MYCAW) patient-nominated Concern 1 on the patient self-scoring visual analogue scale at baseline and the two-week follow-up. Secondary outcomes include difference in scores in the MYCAW, EuroQoL (EQ-5D), and Patient Enablement Instrument (PEI) scores at Weeks 2, 4, and 6.
Results. There was a significant association between change in MYCAW score and whether the patients were in the intervention or control group (chi(2)(trend) = 5.51; degrees of freedom = 1; P = 0.019). A higher proportion of patients in the control group had an improvement in MYCAW score from baseline to Week 2: control (34 of 70 [48.6%]) vs. intervention (19 of 66 [28.8%]). There were no significant differences (no detectable effect) between the control and intervention groups in the scores for EQ-5D and Patient Enablement Instrument at 2-, 4-, or 6-week follow-up.
Conclusion. This trial result identifies a potential negative effect of SPARC in specialist palliative care services, raising questions that standardized holistic needs assessment questionnaires may be counterproductive if not integrated with a clinical assessment that informs the care plan.

• 出版日期2015-11