Well-being in amyotrophic lateral sclerosis: a pilot experience sampling study

作者：Real Ruben G L^*; Dickhaus Thorsten; Ludolph Albert; Hautzinger Martin; Kuebler Andrea

来源：Frontiers in Psychology, 2014, 5: 704.

DOI：10.3389/fpsyg.2014.00704

• amyotrophic lateral sclerosis
• ALS
• coping
• well-being
• experience sampling
• ESM
• reminiscence
• rumination

Objective: The aim of this longitudinal study was to identify predictors of instantaneous well-being in patients with amyotrophic lateral sclerosis (ALS). Based on flow theory well-being was expected to be highest when perceived demands and perceived control were in balance, and that thinking about the past would be a risk factor for rumination which would in turn reduce well-being.
Methods: Using the experience sampling method, data on current activities, associated aspects of perceived demands, control, and well-being were collected from 10 patients with ALS three times a day for two weeks.
Results: Results show that perceived control was uniformly and positively associated with well-being, but that demands were only positively associated with well-being when they were perceived as controllable. Mediation analysis confirmed thinking about the past, but not thinking about the future, to be a risk factor for rumination and reduced well-being.
Discussion: Findings extend our knowledge of factors contributing to well-being in ALS as not only perceived control but also perceived demands can contribute to well-being. They further show that a focus on present experiences might contribute to increased well-being.

• 出版日期2014-7-8
• 单位河北医科大学