Parent Experiences Raising Young People with Type 1 Diabetes and Celiac Disease

作者：Erickson Kern I; Freeborn Donna; Roper Susanne Olsen; Mandleco Barbara^*; Anderson Ashley; Dyches Tina

来源：Journal of Pediatric Nursing-Nursing Care of Children & Families, 2015, 30(2): 353-363.

DOI：10.1016/j.pedn.2014.09.011

• Chronic illness
• Qualitative
• Type 1 diabetes
• Celiac disease
• Child/adolescent health

Authors of this qualitative descriptive study interviewed 30 parents concerning their experiences raising a child or adolescent with type 1 diabetes (T1D) and celiac disease (CD). Analysis revealed six themes: (a) health complications of T1D, (b) challenges of daily disease management, (c) financial concerns, (d) the young person's emotional/mental health, (e) experiences with healthcare providers, and (f) experiences with people outside the family and at school. Results suggest nurses need to be sensitive to challenges young people living with T1D and CD and their parents face, conduct ongoing assessments, and provide time during interactions to adequately address concerns.

• 出版日期2015-4