Health Priorities in Adolescents With Inflammatory Bowel Disease: Physicians%26apos; Versus Patients%26apos; Perspectives

作者：Cervesi Chiara^*; Battistutta Sara; Martelossi Stefano; Ronfani Luca; Ventura Alessandro

来源：Journal of Pediatric Gastroenterology and Nutrition, 2013, 57(1): 39-42.

DOI：10.1097/MPG.0b013e31828b5fd4

• adolescence
• inflammatory bowel disease
• insight
• quality of life
• transition

Objectives:Adolescence is a tough age for patients with inflammatory bowel disease (IBD) because they transition from child to adult medicine. Although a better understanding of the experience of illness and therefore a better response to the patient%26apos;s needs have often been stressed, no studies have yet investigated the paediatricians%26apos; insight into their IBD adolescent patients.Methods:A group of adolescents (ages 12-19) diagnosed as having IBD was administered a questionnaire listing 22 items of concern. They were asked to rank each item on a 5-point scale according to the degree of effect on the quality of their everyday life. The same questionnaire was administered to a group of paediatricians experienced in treating IBD and to a group of paediatric residents. Paediatricians and residents were asked to estimate how much each item would affect the quality of an average patient%26apos;s life, according to the same scale. The questionnaire was also used in a face-to-face approach, asking a paediatrician to apply the estimation to an individual patient, instead of an average imaginary one.Results:Fifteen paediatric gastroenterologists, 11 paediatric residents, and 28 patients (female:male=16:12; median age 16.3 years) took part in the study. The majority of patients experienced Crohn disease (17 vs 11 with ulcerative colitis). We found only 6 items overlapping when comparing the top 10 items ranked by patients and paediatricians. The patients%26apos; number 1 concern occupies the ninth position in the paediatricians%26apos; list. The number 1 item for paediatricians is not even mentioned in the patients%26apos; top 10 list. Overall, both paediatricians%26apos; and residents%26apos; rankings were significantly higher than those given by patients.Conclusions:We found a significant misalignment in the estimation of health concerns between IBD adolescent patients and their paediatricians. A better insight into IBD patients%26apos; worries and concerns is crucial for the improvement of the patient%26apos;s quality of life and disease outcome.

• 出版日期2013-7