科研之友
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摘要
Background: In the International Classification of Functioning, Disability and Health (ICF), the World Health Organization introduces the term third-party disability and identifies the need for further investigation into family members%26apos; Functioning and Disability in relation to a significant other%26apos;s health condition. Aims: This qualitative investigation represents the first phase of a mixed methods study to develop a tool for measuring third-party functioning and third-party disability in aphasia. The aims of this phase of the study were to explore: (1) the positive aphasia-related changes associated with third-party functioning, and; (2) the negative aphasia-related changes associated with third-party disability, as experienced by family members of adults with aphasia post-stroke. Methods %26 Procedures: This study used an inductive design with a qualitative descriptive research strategy to explore the lived experience of having a relative with aphasia. Twenty family members (e.g., spouses, parents, children, siblings, etc.) of individuals with aphasia participated in individual in-depth semi-structured interviews. The interviews were analysed using qualitative content analysis. Outcomes %26 Results: Analysis revealed five categories of positive aphasia-related changes associated with third-party functioning: (1) emotions; (2) communication; (3) relationships; (4) recreational activities and social life; and (5) paid/volunteer work or education. In addition, seven categories of negative aphasia-related changes associated with third-party disability were revealed: (1) physical, mental, and emotional health; (2) communication; (3) relationships; (4) recreational activities and social life; (5) paid/volunteer work or education; (6) domestic and caregiving responsibilities; and (7) finances. Conclusions: Interpreted within the framework of the ICF, this study showed how the pervasive effects of aphasia are associated with changes in Functioning and Disability in family members, providing a holistic description of family members%26apos; experience using the standardised language of the ICF. Clinically, these results emphasise the importance of recognising the positive and negative outcomes for close family members in the development of a rehabilitation plan for the family to address their experience of third-party disability.
- 出版日期2013-7-1
