Development and implementation of a patient reported outcome intervention (QLIC-ON PROfile) in clinical paediatric oncology practice

作者：Engelen Vivian^*; Haverman Lotte; Koopman Hendrik; Schouten van Meeteren Netteke; Meijer van den Bergh Esther; Vrijmoet Wiersma Jantien; van Dijk Elisabeth Maria; Last Bob; Detmar Symone; Grootenhuis Martha

来源：Patient Education and Counseling, 2010, 81(2): 235-244.

DOI：10.1016/j.pec.2010.02.003

• Patient reported outcome (PRO)
• Health related quality of life (HRQOL)
• Paediatric oncology
• Clinical practice
• Physician-patient communication
• Development and implementation

Objective: The use of patient reported outcomes (PRO) in routine clinical practice is becoming increasingly common, but there is limited knowledge about the development and implementation of PRO. The objective of the current paper is to provide a thorough description of the development and implementation of a PRO on health related quality of life (HRQOL) - the QLIC-ON PROfile - in clinical paediatric oncology practice.
Methods: The development of the QLIC-ON PROfile is explained by elucidating important choices: the HRQOL instrument, the professional that uses the QLIC-ON PROfile, the optimal form of HRQOL feedback and whether or not a clinically important difference is reported. The description of the implementation of the QLIC-ON PROfile focuses on the education and commitment of the professional that uses the QLIC-ON PROfile. Study design and outcome measures are also elaborated on.
Results: Important considerations regarding the development and implementation of PRO interventions are reported. These considerations have also resulted in educational material.
Conclusion: Our study adds to current knowledge of PRO research. This paper can be used as a practical guide for researchers and other professionals, who are interested in setting up PRO interventions in any clinical setting.

• 出版日期2010-11