Mapping the Ethics of Translational Genomics: Situating Return of Results and Navigating the Research-Clinical Divide

作者:Wolf Susan M*; Burke Wylie; Koenig Barbara A
来源:Journal of Law Medicine & Ethics, 2015, 43(3): 486-501.
DOI:10.1111/jlme.12291

摘要

Both bioethics and law have governed human genomics by distinguishing research from clinical practice. Yet the rise of translational genomics now makes this traditional dichotomy inadequate. This paper pioneers a new approach to the ethics of translational genomics. It maps the full range of ethical approaches needed, proposes a layered approach to determining the ethics framework for projects combining research and clinical care, and clarifies the key role that return of results can play in advancing translation.

  • 出版日期2015