A qualitative study exploring the experiences of parents of children admitted to seven Dutch pediatric intensive care units

作者：Latour Jos M^*; van Goudoever Johannes B; Schuurman Beatrix Elink; Albers Marcel J I J; van Dam Nicolette A M; Dullaart Eugenie; van Heerde Marc; Verlaat Carin W M; van Vught Elise M; Hazelzet Jan A

来源：Intensive Care Medicine, 2011, 37(2): 319-325.

DOI：10.1007/s00134-010-2074-3

• Critical care
• Pediatric
• Experiences
• Needs
• Stress
• Family-centered care
• Qualitative research

To explore parents' experiences during the admission of their children to a pediatric intensive care unit (PICU).
Qualitative method using in-depth interviews. Thematic analysis was applied to capture parents' experiences. Thirty-nine mothers and 25 fathers of 41 children admitted to seven of the eight PICUs in university medical centers in The Netherlands were interviewed.
Parents were interviewed within 1 month after their child's discharge from a PICU. Thematic analysis identified 1,514 quotations that were coded into 63 subthemes. The subthemes were categorized into six major themes: attitude of the professionals; coordination of care; emotional intensity; information management; environmental factors; parent participation. Most themes had an overarching relationship representing the array of experiences encountered by parents when their child was staying in a PICU. The theme of emotional intensity was in particular associated with all the other themes.
The findings provided a range of themes and subthemes describing the complexity of the parental experiences of a PICU admission. The subthemes present a systematic and thematic basis for the development of a quantitative instrument to measure parental experiences and satisfaction with care. The findings of this study have important clinical implications related to the deeper understanding of parental experiences and improving family-centered care.

• 出版日期2011-2