Burden in Caregivers of Older Adults with Advanced Illness

作者：Garlo Katherine; O'Leary John R; Van Ness Peter H; Fried Terri R^*

来源：Journal of the American Geriatrics Society, 2010, 58(12): 2315-2322.

DOI：10.1111/j.1532-5415.2010.03177.x

• caregiver burden
• advanced illness
• social support
• communication

OBJECTIVES
To examine caregiver burden over time in caregivers of patients with advanced chronic disease.
DESIGN
Observational cohort with interviews over 12 months.
SETTING
Community.
PARTICIPANTS
Caregivers of 179 community-living persons aged 60 and older with advanced cancer, heart failure (HF), or chronic obstructive pulmonary disease (COPD).
MEASUREMENTS
Caregiver burden was assessed using a short-form of the Zarit Burden Inventory to measure psychosocial distress.
RESULTS
At baseline, the median caregiver burden was 5 (interquartile range (IQR) 1-11), which indicates that the caregiver endorsed having at least two of 10 distressing concerns at least some of the time. Only 10% reported no burden. Although scores increased modestly over time, the association between time and burden was not significant in longitudinal multivariable analysis. High burden was associated with caregiver need for more help with daily tasks (odds ratio (OR)=23.13, 95% confidence interval (CI)=5.94-90.06) and desire for greater communication with the patient (OR=2.53, 95% CI=1.16-5.53). The longitudinal multivariable analysis did not yield evidence of associations between burden and patient sociodemographic or health characteristics.
CONCLUSION
Caregiver burden was common in caregivers of patients with cancer, HF, and COPD. High burden was associated with the caregiver's report of need for greater help with daily tasks but not with objective measures of the patient's need for assistance, such as symptoms or functional status, suggesting that burden may be a measure of the caregiver's ability to adapt to the caregiving role.

• 出版日期2010-12