Involving patients in clinical research: the Telescot Patient Panel

作者：Fairbrother Peter; McCloughan Lucy^*; Adam Geraldine; Brand Richard; Brown Cecil; Watson Mary; Cotter Nicola; Mackellaig Juliet; McKinstry Brian

来源：Health Expectations, 2016, 19(3): 691-701.

DOI：10.1111/hex.12132

• clinical trials
• methodologies
• patient involvement
• primary care
• stroke
• telehealth

BackgroundTo date, patient involvement in the development of clinical research work has been limited. In 2011, the Telescot research team commenced work on a feasibility trial to investigate home telemonitoring of blood pressure for people who have experienced stroke or transient ischaemic attack (TIA). The team decided to involve patients in the development of the research.
ObjectivesTo improve research design through patient involvement.
Method of patient involvementA modified form of the Scrutiny Panel' approach was used to involve people who had stroke in the research project.
ResultsThe Patient Panel supported the research in three key ways: it informed patient communication; it presented patient perspectives on the applicability and usability of the intervention; and it guided the development of the qualitative study.
DiscussionThe initiative was considered a positive experience for all. However, challenges were identified in terms of the time and cost implications of undertaking patient involvement.
Implication for research practiceImportance is attached to adequate project planning and development, partnership working with community-based organizations and the necessity for clear role delineation between patients and professionals to enable effective collaborative working.
ConclusionsThe Telescot Patient Panel was beneficial in supporting the development of the feasibility trial. The Panel approach was considered transferable to other clinical research contexts.

• 出版日期2016-6