A new scale for the measurement of quality of life in children with intellectual disability

作者：Gomez Laura E; Angeles Alcedo Ma; Arias Benito; Fontanil Yolanda; Arias Victor B; Monsalve Asuncion; Angel Verdugo Miguel

来源：Research in Developmental Disabilities, 2016, 53-54: 399-410.

DOI：10.1016/j.ridd.2016.03.005

• Quality of life
• Intellectual disability
• Infancy
• Adolescence
• Assessment
• Test validation

Background: Children and adolescents with intellectual disabilities make up a group which is in urgent need of an adequate operationalisation of the quality of life construct, not only to improve individual personal outcomes but also to develop and implement evidence based practices. For that reason, and with the aim of answering the growing demand for an adequate evaluation instrument for this group, the KidsLife scale was developed.
Method: This research provides evidence of the reliability and validity of the scale, which is composed of 96 items spread over eight subscales, and completed by a third-party respondent. The validation sample comprised 1060 people with intellectual disability, with ages ranging from 4 to 21 years old (M = 13.51; SD = 5.04).
Results: The results suggest that the eight quality of life domains assessed on the scale are reliable (Cronbach's alpha ranging from 0.812 to 0.949). The evidence of the validity of the construct provided by Confirmatory Factor Analysis also demonstrated adequate indexes of fit for the eight-domain model.
Discussion: Future lines of research which may use the KidsLife Scale are suggested and discussed.

• 出版日期2016-7