Divergent Views of Hope Influencing Communications Between Parents and Hospital Providers

作者：Roscigno Cecelia I^*; Savage Teresa A; Kavanaugh Karen; Moro Teresa T; Kilpatrick Sarah J; Strassner Howard T; Grobman William A; Kimura Robert E

来源：Qualitative Health Research, 2012, 22(9): 1232-1246.

DOI：10.1177/1049732312449210

• communication, medical
• content analysis
• culture / cultural competence
• decision making
• disability / disabled persons
• end-of-life issues
• infants, high-risk, parenting
• pregnancy, high-risk
• relationships, health care

This study evaluated parents' and health care providers' (HCPs) descriptions of hope following counseling of parents at risk of delivering an extremely premature infant. Data came from a longitudinal multiple case study investigation that examined the decision making and support needs of 40 families and their providers. Semistructured interviews were conducted before and after delivery. Divergent viewpoints of hope were found between parents and many HCPs and were subsequently coded using content analysis. Parents relied on hope as an emotional motivator, whereas most HCPs described parents' notions of hope as out of touch with reality. Parents perceived that such divergent beliefs about the role of hope negatively shaped communicative interactions and reduced trust with some of their providers. A deeper understanding of how varying views of hope might shape communications will uncover future research questions and lead to theory-based interventions aimed at improving the process of discussing difficult news with parents.

• 出版日期2012-9
• 单位西北大学