Understanding pain and coping in women with interstitial cystitis/bladder pain syndrome

作者：Katz Laura; Tripp Dean A; Carr Lesley K; Mayer Robert; Moldwin Robert M; Nickel J Curtis

来源：BJU International, 2017, 120(2): 286-292.

DOI：10.1111/bju.13874

• interstitial cystitis/bladder pain syndrome
• pain
• coping
• disability
• self-regulation
• mental health

Objectives
To examine a self-regulation and coping model for interstitial cystitis/bladder pain syndrome (IC/BPS) that may help us understand the pain experience of patients with chronic IC/BPS.
Patients and Methods
The model tested illness perceptions, illness-focused coping, emotional regulation, mental health and disability in a stepwise method using factor analysis and structural equation modelling. Step 1, explored the underlying constructs. Step 2, confirmed the measurement models to determine the structure/composition of the main constructs. Step 3, evaluated the model fit and specified pathways in the proposed IC/BPS self-regulation model. In all, 217 female patients with urologist diagnosed IC/BPS were recruited and diagnosed across tertiary care centres in North America. The data were collected through self-report questionnaires.
Results
An IC/BPS self-regulation model was supported. Physical disability was worsened by patient's negative perception of their illness, attempts to cope using illness-focused coping and poorer emotional regulation. Mental health was supported by perceptions that individuals could do something about their illness, using wellness-focused behavioural strategies and adaptive emotion regulation.
Conclusions
The results clarify the complex and unique process of self-regulation in women with IC/BPS, implicating cognitive and coping targets, and highlighting emotional regulation. This knowledge should help clinicians understand and manage these patients' distress and disability.

• 出版日期2017-8