Meaning in Life in Patients With Progressive Supranuclear Palsy

作者：Fegg Martin Johannes^*; Koegler Monika; Abright Carina; Hensler Mira; Lorenzl Stefan

来源：American Journal of Hospice and Palliative Care, 2014, 31(5): 543-547.

DOI：10.1177/1049909113492411

• meaning in life
• progressive supranuclear palsy
• coping
• response shift

This exploratory study investigated meaning in life (MiL) in patients with progressive supranuclear palsy (PSP). In the "Schedule for Meaning in Life Evaluation'' (SMiLE), respondents list individual MiL areas before rating their current satisfaction and importance with them (index of weighting [IoW], index of satisfaction [IoS], and index of weighted satisfaction [IoWS], range 0-100). A total of 38 patients with PSP completed the SMiLE (IoS: 68.6 +/- 25.6, IoW: 79.6 +/- 12.6, and IoWS: 69.2 +/- 26.1). A representative sample of healthy participants (n = 977) scored significantly higher in the IoS (82.8 +/- 14.7, P < .001), the IoW (85.6 +/- 12.3, P = .006), and the IoWS (83.3 +/- 14.8, P < .001). Compared to healthy individuals, patients with PSP were less likely to list health (P = .001) and more likely to list partner (P = .04), leisure (P = .01), home/garden (P = .01), and pleasure (P = .02). Patients with PSP seem to focus on supportive relationships and leisure, while the decreasing health status is becoming less important to them.

• 出版日期2014-8