Adolescent cancer patients' perceived quality of cancer care: The roles of patient engagement and supporting independence

作者：Siembida Elizabeth J^*; Kadan Lottick Nina S; Moss Kerry; Bellizzi Keith M

来源：Patient Education and Counseling, 2018, 101(9): 1683-1689.

DOI：10.1016/j.pec.2018.04.002

• Quality of care
• Patient engagement
• Adolescent cancer
• Patient-provider relationship

Objectives: A lack of focus on variation in engagement among cancer populations of differing developmental stages led us to examine the associations between patient engagement, the patient-provider relationship, cognitive development, readiness to transition to adulthood (transitional readiness) and perceived quality of care.
Methods: A sample of 101 adolescent cancer patients (diagnosed 1020 years) completed survey items concerning patient engagement, dimensions of the patient-provider relationship, cognitive development, transitional readiness, and demographic characteristics using an iPad/tablet during a routine clinic visit.
Results: Patient engagement was not significantly associated with perceived quality of care (b?=?.02, 95% CI: -0.06, 0.11). Instead, adolescents with providers that supported their independence (b?=?.34, 95% CI: 0.17, 0.52) were significantly more likely to perceive higher quality care.
Conclusion: Supportive patient-provider relationships are an integral part of adolescents perceptions of quality of care. Adolescents are still gaining important skills for navigating the medical system, and the patient-provider relationship may provide an important scaffolding relationship to help adolescents build independence in their treatment experience.
Practice implications: independence and improve quality of care. Published by Elsevier B.V.

• 出版日期2018-9