The power in being together for young adults who have heart disease - the photoshoot experience

作者：Gallagher Robyn^*; Potter Ellen; Mangnall Linda Thomson; Ladak Laila; Gallagher Patrick; Neubeck Lis

来源：Heart & Lung, 2017, 46(3): 199-204.

DOI：10.1016/j.hrtlng.2017.02.004

• Congenital heart disease
• Cardiac disease
• Automatic implantable cardioverter defibrillator (ICD)
• Young adult
• Experiences
• Photoshoot
• Social support

Objectives: The study aimed to determine perceived motivations and benefits of photoshoot participation for young adults who have heart disease.
Background: Feeling isolated and different can have lifelong affects on quality of life in heart disease survivors. Photoshoots, where people create a photographic image of themselves, promote positive interpretation of their cardiac illness experience, but participant experiences remain under-investigated.
Methods: Young adult heart disease support group members completing a photoshoot were interviewed and data were thematically analyzed.
Results: Seven females and one male aged 20-47 years participated. The main theme, People Like Me, emphasized feelings of being different, isolated and uncertain due to the heart disease. Other themes related to support gained from people who were not like them, gaining and providing support to their peers. The photoshoot enabled a highly valued collective feeling.
Conclusions: For young adult heart disease survivors, the photoshoot provides a fun, social opportunity to reduce isolation and share experiences.

• 出版日期2017-6