A Qualitative Study of Family Caregiver Experiences of Managing Incontinence in Stroke Survivors

作者：Tseng Chien Ning; Huang Guey Shiun; Yu Po Jui; Lou Meei Fang

来源：PLos One, 2015, 10(6): e0129540.

DOI：10.1371/journal.pone.0129540

Background
Incontinence is a common problem faced by family caregivers that is recognized as a major burden and predictor of institutionalization. However, few studies have evaluated the experiences of family caregivers caring for stroke survivors with incontinence.
Purpose
To describe experiences of caregivers managing incontinence in stroke survivors.
Design
This qualitative descriptive study employed a grounded-theory approach.
Methods
Semi-structured in-depth interviews with ten family caregivers of stroke survivors with incontinence were conducted during 2011. Audiotaped interviews were transcribed and analyzed using content analysis.
Findings
Data analysis identified four themes: chaos, hypervigilance, exhaustion, and creating a new life. There were nine related subcategories: fluster, dirtiness, urgency, fear of potential health-hazard, physically demanding and time-consuming, mentally draining, financial burden, learning by doing, and attitude adjustment. Together, these described a process of struggling to cope with the care of stroke survivors with urinary/fecal incontinence. Of the four categories, "creating a new life" developed gradually over time to orient caregivers to their new life, while the other three categories occurred in a chronological order.
Conclusion
The research highlighted unique caring experiences of family caregivers of stroke patients, which focused solely on the 'incontinence issue'. Understanding these experiences may help nurses provide better support and resources for family caregivers when caring for stroke survivors with incontinence.

• 出版日期2015-6-12