Development and evaluation of an educational web site for adults with cystic fibrosis

作者：Anand Anju^*; Tullis Elizabeth; Stephenson Anne; Abhyankar Preyanka

来源：Journal of Cystic Fibrosis, 2014, 13(3): 306-310.

DOI：10.1016/j.jcf.2013.10.013

• Web-based patient education
• Adult
• Cystic fibrosis
• Development
• Evaluation

Background: The high prevalence of internet use among adults with cystic fibrosis (CF) provides an opportunity for healthcare professionals to use the intemet as a tool for patient education. The Toronto Adult Cystic Fibrosis website was developed, implemented, and evaluated (www.torontoadultacom).
Methods: The website structure and content were developed following a needs assessment questionnaire. The website was evaluated with a satisfaction survey and through examination of compliance to American Medical Association (AMA)'s guidelines for health information sites.
Results: Users showed a high prevalence of internet usage (98.7%), described a need for more information about CF and provided content suggestions. A satisfaction survey revealed that CF patients compose the highest proportion of site users (57.5%), and users perceive the site as useful, with a mean score of 4.3 on a five-point satisfaction scale. Key areas for improvement have been identified. Website compliance with AMA guidelines was excellent at 80%.
Conclusions: The Toronto Adult CF website provides needed information for our patients. Future directions include ongoing improvement of the website as a patient resource and assessment of the ability of the website to improve patient knowledge and outcomes.

• 出版日期2014-5