Development of a scale for assessing respondents%26apos; perceptions of health research questionnaires (the REP-HQ Scale)

作者：Bouhnik Anne Deborah^*; Fabre Roxane; Dorval Michel; Mancini Julien; Mouret Fourme Emmanuelle; Nogues Catherine; Julian Reynier Claire

来源：Journal of Clinical Epidemiology, 2012, 65(10): 1098-1106.

DOI：10.1016/j.jclinepi.2012.05.010

• Scale
• Health research
• Questionnaire
• Instrument
• Validation
• Psychometrics

Objective: To develop a scale for assessing Respondents%26apos; Perceptions of Health Research Questionnaires (the REP-HQ Scale) and test this scale psychometrically. %26lt;br%26gt;Study Design and Setting: A scale was drawn, based on detailed content analysis of patients%26apos; free comments, which were collected prospectively in a 2-year cohort study (n = 228). The questionnaire corresponding to this scale was subsequently completed by a cohort of female BRCA1/2 carriers/noncarriers not affected by cancer, who had been followed up for 5 years since test result disclosure (n = 246). Principal component analysis, Cronbach%26apos;s alpha coefficient, and Pearson%26apos;s correlations were used in the statistical analyses. %26lt;br%26gt;Results: The perceived effects that emerged from the respondents%26apos; responses were analyzed and classified under the headings: %26quot;Useful medical information,%26quot; %26quot;Usefulness of research,%26quot; and %26quot;Labeling intrusion.%26quot; Cronbach%26apos;s alpha coefficients on the three dimensions were 0.75, 0.64, and 0.56, respectively. Carriers obtained lower scores than noncarriers on the first dimension (P = 0.005) and on the overall score (P = 0.002). %26lt;br%26gt;Conclusions: The REP-HQ scale is the first generic tool to be developed for assessing participants%26apos; perceptions about the effects of health research questionnaires. Further testing is now required to confirm the validity of the findings obtained here by applying this tool in other settings.

• 出版日期2012-10