A Qualitative Study of Factors Influencing Decision-Making after Prenatal Diagnosis of down Syndrome

作者：Reed Amy R^*; Berrier Kathryn L

来源：Journal of Genetic Counseling, 2017, 26(4): 814-828.

DOI：10.1007/s10897-016-0061-8

• Down syndrome
• Prenatal testing
• Decision-making
• Termination
• Adoption

Previous research has identified twenty-six factors that may affect pregnancy management decisions following prenatal diagnosis of DS; however, there is no consensus about the relative importance or effects of these factors. In order to better understand patient decision-making, we conducted expansive cognitive interviews with nine former patients who received a prenatal diagnosis of DS. Our results suggest that patients attached unique meanings to factors influencing decision-making regardless of the pregnancy outcome. Nineteen of the twenty-six factors previously studied and four novel factors (rationale for testing, information quality, pregnancy experience, and perception of parenting abilities and goals) were found to be important to decision-making. We argue that qualitative studies can help characterize the complexity of decision-making following prenatal diagnosis of DS.

• 出版日期2017-8