Development of an acceptable and feasible self-management group for children, young people and families living with Type 1 diabetes

作者：Cai R A; Holt R I G; Casdagli L; Viner R M; Thompson R; Barnard K; Christie D^*

来源：Diabetic Medicine, 2017, 34(6): 813-820.

DOI：10.1111/dme.13341

AimsThis study developed an acceptable and feasible self-management intervention that addresses the self-identified needs of children and young people with Type1 diabetes and their parents.
MethodsPhase1 reviewed previous interventions and interviewed the clinical team, young people and families. Phase2 ran three age-matched focus groups with 11 families of children aged 8-16years. Feedback was used to modify the workshop. Phase3 evaluated feasibility of delivery, as well as the effects on metabolic control, quality of life and fear of hypoglycaemia, measured at baseline and 1-3months post intervention.
ResultsEighty-nine families were invited to take part. Twenty-two (25%) participated in seven pilot groups (median age of young people 10years, 36% girls). The intervention comprised a developmentally appropriate workshop for young people and parents addressing: (1) blood glucose control, (2) the potential impact of long-term high HbA(1c), (3) the effects of hypos' and hypers', (4) self-management techniques and (5) talking confidently to people about diabetes. Participants were enthusiastic and positive about the workshop and would recommend it to others. Young people liked sharing ideas and meeting others with diabetes, while parents enjoyed listening to their children talk about their diabetes knowledge.
ConclusionsFamilies living with Type1 diabetes participated in developing a self-management group intervention. Although we demonstrated acceptability and feasibility, the pilot study results do not support the development of a randomized control trial to evaluate the effectiveness in improving HbA(1c).

• 出版日期2017-6