科研之友
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摘要
To investigate patient, family and the healthcare provider%26apos;s perspectives on disease-based and patient-based management of epilepsy as one of the most common neurologic disorders. Epilepsy is a chronic disease with psychosocial and cultural ramifications unseen in any other condition. This study highlights the importance of holistic approach in medical management of epilepsy. In a qualitative study participants%26apos; perceptions of epilepsy and its medical management were explored. The purposely selected 33 participants were epileptic patients (23), family members (5) and healthcare providers (5). Recruitment sites were the Iranian Epilepsy Association, private practice offices and hospitals. Data were collected through semi-structured in-depth interviews and analyzed using arbitrary qualitative content analysis. Three main themes emerged as: 1) absence of holistic health views; 2) lack of therapeutic and healing approach; and 3) fragmented healthcare and communication systems. Results identified a need for patient-based approach to epilepsy along side medical management. Although healthcare systems recognize the importance of holistic patient care and disease management, epileptic patients in Iran with greatly benefit from a coherent and specialized team of healthcare providers who can address epileptic patient%26apos;s concerns and communicate with their family members. Cultural taboos associated with epilepsy in countries like Iran, has not been explored and disease management by a neurologist is mainly focused on medical treatment. Thus, a cohort team familiar with holistic and patient-based approach can improve the quality of care for epileptic patients by enhancing their overall quality of life. [Hosseini N, Sharif F, Ahmadi F. Zare M. Disease-Based versus Patient-Based Approach in Epilepsy Management from the Patients%26apos; Point of View: A Qualitative Research. Life Sci J 2012; 9(3):1983-1990] (ISSN:1097-8135). http://www.lifesciencesite.com.286
- 出版日期2012
